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onePOSSIBLE: Be ONE who makes a cure POSSIBLE!
The Progeria Research Foundation [PRF] is literally in warp speed. PRF was founded in 1999 by the parents and aunt of my new hero: Sam, who has progeria and is now 14 years old. PRF has gone from infancy to gene discovery/identification in 2003 to diagnosis and now looking toward their third drug trial in 2012. These are not just any parents – both are brilliant and well established in the field of Pediatric medicine. You will not find anyone more dedicated to finding a cure as soon as possible. They are just as keenly aware as Ryan and I that time is so short. We must move quickly!
While the second drug trial is wrapping up, PRF is working to set up / finalize a third drug trial that Carly would participate in. We need your help. Your donations help to fund the drug trials where progeria kids gather from around the world to receive medicines and be evaluated. Like us, they are providing tissue samples, medical charts, information and daily measurements to PRF so that they can be the nucleus of information and keep researchers across the globe working on a cure. Additionally, we have received information and support from PRF that no doctors could possibly provide. This information was not available 5 or even 2 years ago! With science and technology today, the PRF team is utilizing every resource possible while it speeds toward a cure.
Today Carly is 2 years old, has fallen off the weight percentile chart, but is growing steadily in height thanks to growth hormone injections and supplements. She is smart as a whip, very funny and ALWAYS smiling.
Please, if you can support us and The Progeria Research Foundation, we would be so grateful. This latest clinical trial is estimated to cost over $3.5 million. We will get there – but we need your help. Please donate today.
Thank you so very much!
Heather Kudzia
