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“I won’t give up if you don’t give up!”
The Progeria Research Foundation [PRF] is in warp speed toward a cure! PRF was founded in 1999 by the parents and aunt of Sam, who has progeria and is now 16 years old. PRF has gone from infancy to gene discovery/identification in 2003 to diagnosis and in 2013 expanding their third drug trial in to include 40 additional children… including Carly!
Carly and her new friend Zoey both traveled to Boston for their first treatment for Progeria at Boston Children’s Hospital this July (2013). Both were evaluated by a team of specialists and provided 3 medicines that they will take to treat Progeria over the next two years. These medicines are not a cure; they are a proven treatment to lessen some of the cardiovascular and bone effects of Progeria. So, while this is great progress, there is still more work to be done.
The Progeria Research Foundation is not only conducting this clinical trial, but issuing grants and tissue/cell samples around the world for top research teams to study and test on. The treatments on the horizon move us slowly and steadily toward a cure, however, with the additional research and expansion of the drug trial comes much increased cost. Please, if you can donate to our cause, we would appreciate it!
Today Carly is 3 years old, has fallen off the weight percentile chart, but is growing steadily in height thanks to growth hormone injections and supplements. She is smart as a whip, very funny and ALWAYS smiling.
Please, if you can support us and The Progeria Research Foundation, we would be so grateful. This latest clinical trial expansion is estimated to cost over $3 million. We will get there – but we need your help. Please donate today.
Thank you so very much!
Heather Kudzia and Carly Cares Corp