We are so thankful for your support, and all of the love and positivity everyone has shown us so far.
On April 21, 2011, after months of testing, our little Carly-Q was diagnosed with Progeria. Carly is the 80th child living with Progeria in the world.
Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.