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Who We Are

Carly Cares is a 501(c)3 Non-Profit corporation founded in 2013 whose mission is to benefitΒ children with rare genetic diseases, including Hutchinson-Gilford Progeria.

2 weeks ago

Carly-Q

Just had to share this pic and post of our pretty friend, Kaylee. Strong, sassy, sweet and smart as a whip - Kaylee will be 15 next month and is raising money for the Progeria Research Foundation if you’d like to help!
πŸ™ŒπŸΌπŸ’ƒπŸ’•Kaylee, from Ohio, will be turning 15 in July and will be starting high school in the fall.
Kaylee has been taking lonafarnib since she was 4 years old when she joined the PRF-funded clinical trial. She loves to dance (her favorite type is hip-hop!) and is currently on the EDC dance team. Kaylee is excited because soon she can get her driving learners permit, and she cannot wait to get behind the wheel!
Kaylee is proof that lonafarnib is giving children with Progeria stronger, longer, and more active lives. Please help us keep this treatment available to Kaylee and all children with Progeria, while we continue to search for a cure.
Progeria clinical drug trials are the path to the cure. Please be ONE to make the cure POSSIBLE: Donate to Team Kaylee today.
ow.ly/PROU30kJA5I
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Just had to share this pic and post of our pretty friend, Kaylee. Strong, sassy, sweet and smart as a whip - Kaylee will be 15 next month and is raising money for the Progeria Research Foundation if you’d like to help!
πŸ™ŒπŸΌπŸ’ƒπŸ’•

 

Comment on Facebook

Wow, love the Hat, Looking good

Can I send her an encouragement card/letter?

Looking good!!

1 month ago

Carly-Q

Today is Carly's 8th birthday.

Because every photo of her is our favorite -- please help us celebrate by sharing your favorite photo of Carly below.

Happy birthday, baby girl! πŸŽ‚πŸŽˆπŸŽ‰

#LoveOn!
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Today is Carlys 8th birthday.  

Because every photo of her is our favorite -- please help us celebrate by sharing your favorite photo of Carly below. 

Happy birthday, baby girl! πŸŽ‚πŸŽˆπŸŽ‰

#LoveOn!

 

Comment on Facebook

How am I supposed to pick just one picture when there are sooo many good ones!? Thanks for making life a little simpler by laughing all day, everyday, always having energy and continuing to love on πŸ’•πŸ’• Happy birthday love bug 🐞 I hope you have the best day ever!!! πŸŽ‰

Happy Birthday, Carly! πŸ’— Miss Desiree

The day she and Quinn decided they were twins 😍. Happy birthday Carly Q!

My son Marcus is in the middle - he went on the Champion trip with his cousin Michael (MN Champion 2014). Marcus loved Carly and Nathan!! Happy Birthday sweet Carly. Wishing you a year full of health, adventure and joy! πŸŽ‚πŸŽˆπŸŽ‰

The year she stole my ❀️! Happy Birthday sweet Carly!

Happy birthday little angel! Hope you enjoy your day with your loved ones and may God continue to bless you each and every day and bless you with many more years!! πŸŽ‰πŸŽŠπŸŽ‚ Difficult to pick one favorite of this beautiful lady but here is one

Happy Birthday sweet girl! We love you and hope your day is as amazing as you are!!

Happy Birthday Carly!! We hope your day is as awesome as you!

Eres admirable tienes un gran corazΓ³n Judy Mireles tqm dtb siempre en tu hermoso trabajo.... dios bendiga siempre a esta hermosa princesa feliz cumpleaΓ±os carlyπŸŽŠπŸŽ‰πŸ‘ΈπŸŽ‚

Happy 8th birthday Carly. Hope your day is blessed and all your wishes come true. Sorry it wasn't working and I had to write two comments. God is looking down on you and smiling Carly, He is so proud of the person you are. β™‘πŸ’–

Just a girl and a little dog 😊 Happy Birthday!!!

Happy birthday sweet girl!!! This is my favorite picture πŸ’—

Feliz Cumpleanos..it was great finally meeting you when you came thru my lane at kroger!! Have an Awesome birthday!!

Happy Birthday Carly. Love this picture with the ocean behind you.

Happy birthday sweetie! Hope you get everything that your heart desires.

Happy Birthday, beautiful! Have a fabulous day Carly!!

HAPPY BIRTHDAY CARL, YOU SWEETHEART!

Happy birthday Carly I met you when you was around 2 or you was selling raffle tickets in White House

Happy birthday to you Carly gal.

Blessings prayers for you Happy birthday

Happy Birthday Carly Love your spirit!

Hi Carly, I don't have a picture of you, but I wish you the very best birthday. You're a strong little girl and have won the hearts of many. <3

Happy Birthday Carly. Wishing you a year of good health and happiness!

Happy Birthday Carly have a wonderful day with lots of fun

Happy birthday Q you'll be celebrating the next two weeks!

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1 month ago

Carly-Q

Happy Father’s Day to this guy πŸ‘‡πŸΌπŸ‘‡πŸΌ
And my Grandpa, and my Papa!
πŸ’•
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Happy Father’s Day to this guy πŸ‘‡πŸΌπŸ‘‡πŸΌ
And my Grandpa, and my Papa!
πŸ’•

 

Comment on Facebook

Love this picture of you Carly and your Dad!! ❀️ Ryan Kudzia

Great picture!!

Her smiles just makes my day.

Hermosa Carly feliz dia a tu papa.Mi amor sos tan linda besos desde Argentina

What a beautiful picture! Happy Fathers Day !

Cute!

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1 month ago

Carly-Q

Friends, sand, sun.
Very thankful. β˜€οΈπŸŒŠπŸ’•πŸ™πŸΌ
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Comment on Facebook

Hope you have a wonderful time at the beach Miss Carly! Love you!

Love you Carly girl🌷

Have fun, Carly!

You enjoy the beach Carly, make sure you make lots of sandcastles. β™‘

Te amo amiga Carly besos

You are one very special beach baby! You are rockin the suit and glasses!!

Nice work Carly! Hugs and kisses sent.

you are adorable...have a most wonderful timeβ£οΈπŸ˜ŽπŸ–οΈ

She's so cute!

Precious!!

WHATS MY BABY DOING?/

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1 month ago

Carly-Q

βœˆοΈβ˜€οΈπŸŒŠπŸ‘™πŸ™‹πŸΌβ€β™€οΈ
Beach bound. Pictures to come!
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Comment on Facebook

How's Carly been?

hi it is me Courtney and i want to say that Carly is my best BFF forever and she is sweeter than any kid i met.She is the best kid i had ever seen in my life

Going to miss you Tues and Wed! Have a lot of fun! ❀️

Have fun Q!!🐳🌴🐚

Toes in the sand Carly!

Have fun

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