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Who We Are

Carly Cares is a 501(c)3 Non-Profit corporation founded in 2013 whose mission is to benefitΒ children with rare genetic diseases, including Hutchinson-Gilford Progeria.

2 weeks ago

Carly-Q

Carly (and Friends) Go to Camp
For those of you who missed the 7th Annual Carly's Party - for the Cure! β€” We showed a video that followed Carly (and friends) as they spent an exclusive weekend together at the Hole In The Wall Gang Camp.

The video gives you a little insight about the importance of our Progeria Family Weekends and how special these relationships are.

For a couple of days, Carly and her friends, feel like normal children. There are no second-glances, no explanations ... just love and acceptance. While the camp is free for our families, Carly Cares arranged for travel to and from Ashford, CT, with the help of generous donations. Families traveled from as far as Adelaide, Australia.

(Note: this video was not originally intended for public release, but many families asked us to make it public so that they could share it.)

Our deepest gratitude for your generosity and support ... and to The Hole in the Wall in the Gang organization: for their kindness and warmth. We can't wait to go back!

Love On!
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Comment on Facebook

Amazing, such a wonderful organization...as a ped nurse of 30 yrs and having first hand knowledge of progeria, I can not say enough how beautiful this was to watch

Absolutely brought tears of pride to my eyes watching Carly climb that wall and zip line! She's so brave, more so than a lot of kids. Love you sis - To the moon and back ❀️

Thank you for sharing this wonderful video, Heather. So happy to see so many joyful, smiling faces!

Thanks, Rece Gilder is my grandson.

WOW! LOVE this (and the Kudzia's). Thank you for sharing. Beautiful. 🎯❀️ LOVE ON! ❀️❀️❀️ Jean Fleet Renee Blessing

Beautiful! So proud of you Heather and Carly for your voices and positivity!

It is wonderful to see these children happy and have such great experiences with each other.

Laurie Joy Argall THIS!!!! Text me when you see this ❀️

Alejandra

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2 weeks ago

Carly-Q

Dear Village,

YOU. ARE. INCREDIBLE.
Thank you for stepping up year after year to support our work for Progeria families. Together, we are impacting the lives of many truly special families - and hopefully, while doing so, touching your life too. The 7th Annual Carly's Party - for the Cure! was a tremendous success, and I'm proud to share that nearly $85,000 was raised!!
AH-MAZING!

For those who couldn't attend, I wish I could convey the overwhelming feeling of Love that was in the air. For those that were, comment below if you agree?!

We are so, so thankful to all those that support by volunteering, donating goods and services, and sponsoring our event. Thank you all for being part of Team Carly-Q!

Extra special thanks to Loma Linda Restaurant, Mark Feldstein & Associates, Triad Retail Media, Buckeye Broadband, Montpelier Moose, Greg Justus and The Bridges Toledo!

LOVE ON! <3
... See MoreSee Less

Dear Village,

YOU. ARE. INCREDIBLE.
Thank you for stepping up year after year to support our work for Progeria families. Together, we are impacting the lives of many truly special families - and hopefully, while doing so, touching your life too. The 7th Annual Carlys Party - for the Cure! was a tremendous success, and Im proud to share that nearly $85,000 was raised!! 
AH-MAZING!

For those who couldnt attend, I wish I could convey the overwhelming feeling of Love that was in the air. For those that were, comment below if you agree?!

We are so, so thankful to all those that support by volunteering, donating goods and services, and sponsoring our event. Thank you all for being part of Team Carly-Q!

Extra special thanks to Loma Linda Restaurant, Mark Feldstein & Associates, Triad Retail Media, Buckeye Broadband, Montpelier Moose, Greg Justus and The Bridges Toledo!

LOVE ON!

Comment on Facebook

My sincere apology for not being there, I was on disability and was stuck in the house...I'm finally back to work 1/2 time. Let me know if there's anything I can do for you and your important cause!

It was a great night 😍 LOVE ❀️ ON CARLY

Love this little girl!

Totally agree!! It was awesome β™‘

Awesome time as always ! 😍😍😍

Hurray Carly!!! Love!!!

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2 weeks ago

Carly-Q

Dear Village,
YOU. ARE. INCREDIBLE.
Thank you for stepping up year after year to support our work for Progeria families. Together, we are impacting the lives of many truly special families - and hopefully, while doing so, touching your life too. The 7th Annual Carly's Party - for the Cure! was a tremendous success, and I'm proud to share that nearly $85,000 was raised!! AH-MAZING!
For those who couldn't attend, I wish I could convey the overwhelming feeling of Love that was in the air. For those that were, comment below if you agree?!
We are so, so thankful to all those that support by volunteering, donating goods and services, and sponsoring our event. Thank you all for being part of Team Carly-Q!
Extra special thanks to Loma Linda Restaurant, Mark Feldstein & Associates, Triad Retail Media, Buckeye Broadband, Montpelier Moose, Greg Justus and The Bridges Toledo!
LOVE ON! <3
... See MoreSee Less

Dear Village,
YOU. ARE. INCREDIBLE.
Thank you for stepping up year after year to support our work for Progeria families. Together, we are impacting the lives of many truly special families - and hopefully, while doing so, touching your life too. The 7th Annual Carlys Party - for the Cure! was a tremendous success, and Im proud to share that nearly $85,000 was raised!!  AH-MAZING!
For those who couldnt attend, I wish I could convey the overwhelming feeling of Love that was in the air.  For those that were, comment below if you agree?!
We are so, so thankful to all those that support by volunteering, donating goods and services, and sponsoring our event. Thank you all for being part of Team Carly-Q!
Extra special thanks to Loma Linda Restaurant, Mark Feldstein & Associates, Triad Retail Media, Buckeye Broadband, Montpelier Moose, Greg Justus and The Bridges Toledo!
LOVE ON!

Comment on Facebook

The best way EVER to spend a Friday night! Thank you so much for the opportunity to be a part of this!

Yes there was a true love in the crowd.

That's great news . The community step up and made it happen. Can't wait till next year.

This truly makes my heart happy!!! So glad we were able to make it this year!! 😘

Woot! Woot! Glad to be part of this amazing event.

The love that evening that encompassed the event was beyond amazing!

Proud of you all!!!!

Toller Erfolg πŸ’• ist die

Love On. ❀️ Carly-Q , Mark Skeldon ❀️

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2 weeks ago

Carly-Q

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Comment on Facebook

Cute picture Carly-Q

😍😍😍😍😍

πŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’š

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2 weeks ago

Carly-Q

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Comment on Facebook

I see my grandson Rece Gilder!

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